ISPAD Rare Diabetes
The ISPAD Rare Diabetes in Exeter led by Prof. Andrew Hattersley (firstname.lastname@example.org) is the central clearing house for all enquiries from ISPAD members about rare diabetes. It is a resource for information about all forms of diabetes, and offers molecular genetic testing on most monogenic forms of diabetes. If the person (even if an adult today) was diagnosed with diabetes before age 6 months, this analysis is done for free (except for shipping costs).
The leaders of all the 3 registries are collaborating and the eventual aim is to link the data in the registries to increase the sizes of the cohorts. Clinicians who have patients with diabetes syndromes who access the ISPAD rare diabetes registry will be referred on to one of the specialist registries if appropriate, and vice versa.