The ISPAD Rare Diabetes in Exeter led by Prof. Andrew Hattersley (firstname.lastname@example.org) is the central clearing house for all enquiries from ISPAD members about rare diabetes. It is a resource for information about all forms of diabetes, and offers molecular genetic testing on most monogenic forms of diabetes. If the person (even if an adult today) was diagnosed with diabetes before age 6 months, this analysis is done for free (except for shipping costs).
The International Wolfram Registry is led from Washington University, St Louis, USA by Prof Alan Permutt. The registry is open to patients from all over the world. The ISPAD contact person for this registry is Prof Neil White (White_N@kids.wustl.edu).
The EURO-WABB project is a European rare disease registry for Wolfram, Alstrom, Bardet Biedl (WABB), Thiamin responsive megaloblastic anaemia, and Wolcott Rollison syndromes. The ISPAD contact persons are Prof Timothy Barrett (email@example.com) and Prof Wojciech Mlynarski (Wojciech.Mlynarski@joslin.harvard.edu).
The current guideline has been developed by ISPAD and the International Diabetes Federation. While there is extensive evidence on the optimal management of type 1 diabetes, unfortunately such care is not reaching many people who could benefit. Guidelines are one part of a process which seeks to address those problems.
ISPAD has 4 prizes available yearly: ISPAD Prize of Achievement ISPAD Award for Education and Advocacy ISPAD Young Investigator Award The ISPAD Prize for Innovation in Pediatric Diabetes Care Please download the file for further information