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News & Press: ISPAD Newsletter

ISPAD News 10/2019

Friday, October 25, 2019   (0 Comments)
Posted by: F. Admin
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ISPAD NEWS                                                                    No. X / October 2019
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A message from ISPAD's President

When I wake up in the morning I think about preparing for the day ahead and I decide what to wear. I do not have diabetes so I do not need to check my glucose level and decide what insulin to take. I do not have to count carbs and think about my exercise. The only alarm that sounds is the wake-up alarm.
 
I have a long way to drive to work, so need to decide which is the quickest way in the traffic. I use a Navigator, to find the best way; similar to a closed-loop pump insulin delivery system. Which algorithms does my navigator use? Which is the best app?
 
There is building work at the Hospital: will I get parking? How far will I have to walk? Will I be late for that meeting? I do not have to think about whether the sensor is working? Is the set working? Did I miscalculate the carbs I entered?
 
I live in Sydney, with no concerns about the security of food or diabetes supplies. For some families, they may need to decide whether to use their precious glucose testing strip today or not.
 
For those of us preparing for ISPAD’s 45th Annual Conference in Boston, we look forward to sharing different views and different circumstances; and sharing the passion to care for children with diabetes, and to help them navigate the challenges in their lives. We need Grit which is a combination of Passion and Perseverance; we need to inspire this in others.
 
For those not coming, keep safe and enjoy looking after and helping children at home.
 
And don’t forget to vote for the ISPAD positions!
Kim Donaghue
ISPAD President 2018-2020
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Table of Contents

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ISPAD 2019 Updates


On-Site Registration
 
You can still register online for ISPAD 2019 until October 26 (24:00 CET) at the on-site registration rate! After this date you can register in person on-site. Our Registration Desk will open from Tuesday, October 29 - 17:00.

We highly recommend to register and pay online prior to the start of the conference in order to avoid queues on-site!

Remember that as an ISPAD Member you can save up to 270 USD on the registration fee!

Click here to see the registration fees

Should you have any questions regarding registration, please don't hesitate to write to registration-ispad2019@kit-group.org



New: Patient Advocate Registration
ISPAD is pleased to open its registration to patients, patient representatives and patient advocate associations. Read more about it and access the special registration form designed for patients and patients advocates here.
 
       
Register Now!
ISPAD 2019 Mobile App

The ISPAD 2019 Mobile App is now available on the app store! 

Download yours today by clicking on the button below.

A gentle reminder that ISPAD will not be providing paper programs any longer, in our mission to go paper-free.
Read all about it here.
Download the App
ISPAD Networking Space

Visit us at the ISPAD NETWORKING SPACE located in the exhibition area.

You can learn more about ISPAD activities (Science Schools, Postgraduate Courses & much more!), become a member at a reduced rate, pick up your ISPAD Member Welcome Set, meet up with friends & colleagues, read the latest Social Media feeds, and take part in the ISPAD Networking Space Challenge & win a prize!

We look forward to seeing you there!

       

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Host the ISPAD Science School for Physicians 2021

 
We would like to invite members who are interested in organizing the ISPAD Science School for Physicians 2021 to submit their applications.

Click here to find out more about previous Science Schools for Physicians.

 
...and submit your application to host the next school now!

Deadline to apply is February 15, 2020!
Be a Host!
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Conference Resource Platform - Highlighted Chapters: 


Sick Day Management & Limited Care Guidance
Understanding sick day management for young persons with insulin-treated diabetes is important, as children and adolescents may experience multiple acute illnesses annually, placing them at risk for diabetic ketoacidosis (DKA). Thus, it Is extremely important to be familiar with the ISPAD Clinical Guidelines about Sick Day Management. It remains important to frequently monitor glucose and ketones levels during any intercurrent illness and to provide supplemental insulin doses every 2-4 hours along with maintaining hydration status. It is very important – never to stop delivering insulin completely!

Provision of sick day education to patients and family members along with availability of 24 hour, 7 day a week access to expert health care team advice can successfully manage sick days and prevent progression to DKA in young persons with insulin-treated diabetes. Modern diabetes treatment advances can facilitate sick day management; these advancements include blood ketone monitoring in place of urine ketone checks and use of continuous glucose monitoring (CGM) devices that provide frequent glucose data along with trend arrows that can assist with fine-tuning insulin dose adjustments.
Lastly, there are special clinical situations that place young persons with diabetes at high risk for ketogenesis and progression to DKA, including youth with disordered eating behaviors, use of SGLT1/2 inhibitors, and low carbohydrate diets. In these circumstances, frequent glucose and ketone monitoring along timely implementation of sick day management can prevent progression to DKA.
To learn more check the lecture about the Sick day management in type 1 diabetes, challenges in the developed world by Frances Mouat here.


Chapter 23: Limited Care Guidance
Great disparities exist in the level of pediatric diabetes care available to children, resulting from a wide range of factors across the world, from huge imbalances of geographic, economic, and scientific development to gender discrimination. Limited access to insulin, food and supplies, limited access to care, financial burdens, psychosocial instability, and detrimental health beliefs can all contribute to suboptimal care of children with diabetes across the world. For all children with diabetes, the importance of providing a good start with clear, positive messages, support, and advice cannot be over-emphasized. In these settings, it is imperative to establish, as early as possible, a systematic register of patients, demographics, and treatment records. Such data is vital in defining the problem and needs of this population to effectively advocate for these patients and their families.

More than half of the world's population is poor or extremely poor, and in large parts of the world, medical care is predominantly an out-of-pocket expense. Diabetes is an expensive condition to manage, and cost of diabetes care may be prohibitive without external support, for example, government support or health insurance. The availability of insulin and diabetes supplies, such as insulin syringes, glucose meters, and glucose and ketone test strips, may be quite limited, particularly in remote areas. This ISPAD chapter “Chapter 23: Limited Care Guidance Appendix” focuses on the most important aspects of diabetes care and highlights the priorities in less-privileged settings. See the chapter here and read the brief introduction to this Appendix here.
Check the presentation from Francois Bonnici: Societal Impact of Diabetes Resourcing diabetes care in low and middle-income countries and figure out how to adapt and implement clinical guidelines in developing countries by Graham Ogle (Life for a Child – lfacinternational.org).



The Conference Resource Platform has been made possible thanks to an independent educational sponsorship from
Access the entire Platform
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Resource-Limited Countries - E-Learning Project Report

 
It gives us great pleasure to present to you the final report of the RLC E-learning project 'Development of a Global e-learning Curriculum in Pediatric Endocrinology and Diabetes for Front Line Health Care Providers in Resource-Limited Countries (RLC)'.

This project was conceived following a global survey among members of GPED and consists of 16 chapters with 24 complimentary vignettes including a large ISPAD chapter on diabetes, is provided simultaneously in 5 languages: English, French, Spanish, Swahili, and Chinese.
 
Read More
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ISPAD Elections 2019


With less than 10 days to go, remember to cast your vote in the ISPAD Elections 2019!

As a fully paid member, you are invited to cast your vote via the button below, on the following positions:

ISPAD President (2020-2022)
ISPAD Secretary-General (2020-2022)
ISPAD Advisory Council Members (2019-2022)



E-voting will be available during the following period:

Wednesday, August 21, 2019 (CET) - voting opened
Wednesday, October 30, 2019, 15:00 (EDT)  - voting ends

Click here to find out more about the candidates!*
*ISPAD Member login required
Vote Here
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JENIOUS Group Elections - Update!


Thank you to those who submitted their candidacy for the JENIOUS Elections 2019!

The candidates will be announced on the JENIOUS Group page very shortly, and voting will open at the beginning of November. A mailing will go out soon to all JENIOUS members with further information about the voting process.

In the meantime - if you would like to vote in this election, please make sure you have an up-to-date ISPAD Membershipjoin the JENIOUS Group - by November 1 (13:00 CET) latest in order to vote!
 


         
JENIOUS Group Page
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ISPAD Annual General Meeting 2019


We would like to invite all ISPAD Members to this year's Annual General Meeting!

Date: Friday, November 1, 2019
Time: 17:30 - 19:00
Location: Constitution Ballroom. Sheraton Boston Hotel, 39 Dalton St, Boston, MA 02199, USA


We are looking forward to welcoming you!

       

Click for More Info
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ISPAD Idea Box

ISPAD wants to hear from you - we welcome your ideas, suggestions, comments, or questions!

Simply log into your ISPAD Member profile and then click here to submit your feedback through the member idea box!

Members can also vote on their favorite ideas

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Upcoming Events

16th ISPAD Science School for Healthcare Professionals
Dates: 10/27/2019 » 10/29/2019
Location: Boston, USA

ISPAD 2019
Dates: 10/30/2019 » 11/3/2019
Location: Boston, United States


Science School for Physicians 2020
Dates: 09/13/2020 » 09/17/2020
Location: Stratford Upon Avon, United Kingdom

ISPAD 2020
Dates: 10/14/2020 » 10/17/2020
Location: Abu Dhabi, United Arab Emirates

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