Dear colleagues and friends,
Over the last years ISPAD has supported the integration of diabetes clinic data in the SWEET database. This is becoming progressively a worldwide clinical registry. Such a registry will not only allow comparisons - benchmarking - between centers, but it can also contribute to combine forces in tackling diagnostic challenges, and in improving care for the rare forms of diabetes.
To move this aspect forward, SWEET will apply for the ERN Diabetes status (European Reference Networks). The objectives of an ERN are to share expertise, improve diagnosis, educate and train patients, care providers and doctors, produce guidelines, build databases, develop connections to facilitate research, perform clinical trials on rare diabetes conditions, etc.
Diabetes teams who practice within an EU member state and are interested in being involved in a collaborative European pediatric/adult rare diabetes network need to fill out the self assessment form and contact national authorities to make sure their center meets the requirements to be endorsed as a European Reference Centre (ERC).
For more information from the SWEET and ISPAD presidents, please click here.
Kind regards
Carine de Beaufort